Epidermolysis bullosa (EB) is a rare and challenging condition that remains little understood, affecting patients’ lives deeply. To bring a human perspective to this issue, Relations Group worked with DEBRA to share the experiences of those living with EB, creating an empathetic connection with the public and healthcare professionals alike. By amplifying these personal stories, the campaign aimed to raise awareness, improve diagnosis and community care, and highlight the need for funding to support clinical trials of promising treatments, ultimately fostering greater support and understanding for the EB community.