We supported DEBRA in raising awareness of Epidermolysis Bullosa (EB), a rare and painful skin condition, by sharing heartfelt stories from those affected, including Graham Sunes, who swam the Channel to fundraise and inspire hope, alongside celebrity guest Andy Grist, whose daughter Isla lives with EB. Through initiatives like Rare Disease Awareness Day, we highlighted promising drug repurposing treatments that could transform lives while easing NHS burdens. During EB Awareness Week, we engaged healthcare professionals to improve diagnosis and connect patients to specialist care, amplifying DEBRA’s vital role as a support hub.